Welcome on the French CCHS Network |
Our mission |
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The French association of “Association Française du Syndrome d’Ondine” is a network of solidarity that brings together, helps and supports people affected by this disease.
We are all parents and grandparents of children born CCHS and investing in the association.
Our desire is that a family with a child born with a CCHS is no more isolated and can find support, comfort, listening and information within the association. We think it is important for families to exchange and share their experiences in the difficult moments. One of our main goal is to better take care of CCHS.
The association, families and research teams (clinical, medical and genetic) do their best now.
We need help and funds to run fast and further to win against CCHS.
Our other concerns are:
- School, social and professional integrations of patients,
- Prepare CCHS chidren and teenagers for their adult life,
- Support families,
- Protect rights and les droits et les interests of patients and their parents,
- Broadcast information on the disease,
- Promote reseacrh and establish good relationship with medical community
We are all voluntary and we need membership fee, charities and sponsorships.
Réduction d'impôt: contrats d'épargne handicap |
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Réduction d'impôt
Vous pouvez bénéficier d'une réduction d'impôt pour les primes versées depuis 2001 sur certains contrats.Il s'agit des primes relatives à un contrat de rente-survie garantissant le versement d'un capital ou d'une rente viagère à un enfant handicapé, au décès de ses parents.
Bons d'achat de services à la personne de 200 euros |
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Un projet de décret, soumis au Conseil supérieur de l'Emploi, prévoit l'attribution à des personnes en difficulté de chèques emplois service universel d'un montant de 200€ préfinancés par l'Etat à compter de juin, pour acheter des services à la personne.
