Témoignages

Testimony of Anne Oger

I'm Anne Oger, 32, a native of Anjou (exactly the village Segré in Department 49). 
I am suffering from this disease since my birth. I have very few memories of my early years (a few pictures taken by nurses). Apparently, I believe, from what my parents told me without going into details, I had the umbilical cord around the neck, which prevented me from breathing. 
I spent my first 2 years at the hospital ST VINCENT DE PAUL and ROBERT DEBRE in PARIS, then 4 years following hospital in Angers. 
I started my schooling until age 6. 
During these 30 years, I went through different phases (with continuous ventilation during my early years with a machine HEAVY "THE MONAL" a night ventilation and ventilation for lunch at work with EOLE and VS ULTRA). I went through various steps (ventilation by tracheotomy until my 17 years, then it is closed at this age to go only to the breakdown naso-oral, and nasal). 
I had 3 phases of decompensation, I had swelling, purple fingers (symptoms which we do not feel well at all), I had to be hospitalized in intensive care emergency (especially winter period 2 times in the month of December 2005 and 2007), a reset BOWL TO VENTING THE SUMMER NIGHT MOSTLY BY HIGH HEAT. 
Following the hospitalization in November 2007 during which I stayed about 1 month I have been off work for 3 months to rest, and I returned to work slowly from mid-March. 
In fact the breakdown does not really bother me (or during my studies until BAC +4, or for my work). By cons I have more care to the hospital since 2007 because I have a new tracheotomy, and I followed more regularly (balance gas every 6 months). 
I was happy for a few years from my 17 years, it was a relief when I had more of tracheo I could learn to swim, I can not do now. 
I am now NANTES followed by a pulmonologist about 3 years because I live in this city since the end of my studies in accounting (2001).